Entrevista a Don Sweete: SNOMED CT Back 3 Jul 2019 Back Revista Salud Digital Latinoamérica - Edición Nº 1 features an in-depth, Spanish-language interview with SNOMED International CEO, Don Sweete. Sweete shares his thoughts on the growth of the organization, stakeholder benefits, and the next chapter for SNOMED International. Revista Salud Digital Latinoamérica - Edición Nº 1 - Spanish Interview with Don Sweete - Inaugual Edition - English El Director Ejecutivo, Don Sweete, de la organización habla sobre el proceso de crecimiento de este estándar global para la representación de información de salud, que ya se utiliza en más de 90 países, analiza los beneficios que ofrece a las diferentes partes interesadas y explica su últimas noticias. Subscribe to SNOMED International news Stay up to date on SNOMED news, features, developments and newsletters by subscribing to our news service. Subscribe

SNOMED International celebrates a decade of SNOMED CT-focused events at the SNOMED CT Expo 2021 Back 7 Sept 2021 Back Since the date of issue, this information is now out of date and has been archived. It has been made available for reference. On October 28 and 29, 2021, SNOMED International will host its 10th annual SNOMED CT-focused event. SNOMED CT is the world’s most comprehensive clinical reference terminology, subscribed to by 41 Member countries and used in over 70 countries globally. Featuring a vibrant and knowledge-packed two-day program, the Expo has evolved considerably since SNOMED International began to host SNOMED CT implementation-focused events a decade ago. In October 2011, Peter Fleming, then-CEO of Australia’s National e-Health Transition Authority, welcomed the International Health Terminology Standards Development Organization (as SNOMED International was known as at that time), to the opening events of the first SNOMED CT Implementation Showcase , and standards guru Tim Benson (now CEO of R-Outcomes Ltd.) delivered the inaugural James Read Memorial Lecture keynote. (The James Read Memorial Lecture, which each year celebrates someone who embodies the practical application of SNOMED CT in a real-world setting, honours British physician Dr. James Read, an early pioneer of clinical coding in the 1980s.) At that time, SNOMED International had only 17 Members. Since then, our membership has grown to 41, and our yearly Expos have become increasingly sophisticated in content and format, a result of the maturing digital health/health informatics industry and the ever-expanding universe of SNOMED CT knowledge and expertise. Now, many of the presentations focus on how implementers use SNOMED CT along with other health care standards to deliver the best possible care to their patients. They also reflect how SNOMED International, a member of the Joint Initiative Council for Global Health Informatics Standardization, or JIC , prioritizes collaboration with other health care and health standards development organizations such as the American Medical Association, the International Council of Nurses, HL7 International, the DICOM Standards Committee, Integrating the Healthcare Enterprise, LOINC and CDISC, to name just a few, with the goal of enabling one global language of health. Adapting to changing circumstances Moving to a virtual event in 2020, last year’s Expo drew more than 1,700 registrants from 60 countries. Due to the ongoing pandemic and its varied impact to global regions, this year’s SNOMED CT Expo 2021 participants will also convene virtually. One of the new features we are introducing at SNOMED CT Expo 2021 is that the Introduction to SNOMED CT Tutorial with SNOMED International’s Ian Spiers and Liara Tutina will be offered in four languages: English, French, Spanish and German. Another is the addition of a third keynote session featuring David Hansen, CEO and Research Director of the Australian e-Health Research Centre at CSIRO, Australia’s national science agency. This new keynote is positioned in prime time for all of our Asia-Pacific Members and stakeholders as well as being made available on demand, as will be the case with all Expo sessions. “SNOMED International’s annual Expo has come a long way since we first started hosting this event,” said SNOMED International CEO Don Sweete. “The substantial increase in delegates around the globe reflects both the steadily increasing number of Member countries and their users and the growing interest, depth and maturity of the terminology itself. “If you are interested in learning more about SNOMED CT and how it is contributing to improving the delivery and management of health care globally,” he adds, “consider registering soon, because this year’s event offers a significant degree of value and utility to delegates.” “I would also like to extend my gratitude to Member Portugal, represented by Serviços Partilhados do Ministério da Saúde, or SPMS . Originally slated to host the event in 2020, we look forward to partnering again next year to deliver the SNOMED CT Expo 2022 in Lisbon, September 28-29, 2022.” Join clinical terminology subject matter experts ranging from government officials and health IT professionals to health practitioners, researchers and vendors from around the world as they explore the future of SNOMED CT. Registration for the SNOMED CT Expo 2021 is open and the full program can be accessed at snomedexpo.org . Subscribe here to keep up to date with registration, program and sponsor details as they develop. Subscribe to SNOMED International news Stay up to date on SNOMED news, features, developments and newsletters by subscribing to our news service. Subscribe

Watch the Demo! Powering clinical data analytics with SNOMED CT Back 28 Jan 2019 Back Building on data capture at the point of care, one of the prime uses of SNOMED CT is to enable clinical data analytics. SNOMED CT enables the full benefits of EHRs to be achieved through effective retrieval and reuse of clinical information. In industry, we use the term 'analytics' to describe the discovery of meaningful information from health care data. Why is this critical in today’s global health care environment? The discovery of this meaningful data harvests benefits for patients through to the larger health system. Analytics are used to describe, predict and improve clinical and business performance, and to recommend action or guide patient decision making across health systems globally. Particularly for our Members, analytics guide change and decision making within our health systems. To demonstrate how this is enhanced with clinical terminology, SNOMED International clinical engagement leads, Dr.’s Peter Hendler and Charles Gutteridge, set the stage with a SNOMED CT introduction before delivering a demonstration solving a hands-on clinical dilemma enabled by SNOMED CT, and using simulated clinical data. Data analytics is arguably the most significant revolution in health care in the last decade and an effective means by which to assess individual health information and provide the most personalized, most effective care. Additional guidance on Data Analytics with SNOMED CT is available for your review. To discuss the demonstration in more detail and to learn how you can similarly enable analytics with SNOMED CT within your health care environment, contact us . Subscribe to SNOMED International news Stay up to date on SNOMED news, features, developments and newsletters by subscribing to our news service. Subscribe

Croatia prioritizes the quality and structure of ehealth data with SNOMED membership Back 23 Jun 2023 Back SNOMED International and The Croatian Ministry of Health are pleased to announce that the Republic of Croatia has joined SNOMED International. With a population of nearly 4 million, Croatia is the latest European country to join SNOMED International since the March 2022 announcement that the European Union (EU) will provide its Member States with 60 per cent funding towards SNOMED International membership until 2027, via the European Health and Digital Executive Agency (HaDEA). “Highly developed with a fully integrated, globalized economy, Croatia made eHealth a priority in its 2021-2027 national health development plan , which is consistent with our comprehensive healthcare reform," says Croatian health Minister Vili Beroš on the occasion of Croatia joining SNOMED International. The goals of the strategy include 36 measures in five categories: improved healthy lifestyles and more effective disease prevention; improvement of the health system; improvement of the model of care for key health challenges; making the health system a desirable place to work; and improving the financial sustainability of the health system. SNOMED CT , the world’s most comprehensive health terminology, is developed, maintained and distributed by SNOMED International, a not-for-profit, member-owned and driven international organization founded in 2007 by nine charter nations. The clinical terminology will play an important role in supporting Croatia in achieving its eHealth goals, particularly those pertaining to improving the healthcare system by supporting greater interoperability and by enabling secondary uses of clinical data such as research and data analysis, providing more insights into patients and care delivery. Moving beyond national borders and connecting to the emerging European Health Data Space , SNOMED CT is poised and positioned to strengthen the secure exchange and interoperability of health data across Europe. “It is encouraging to see the positive impact of the European funding commitment for SNOMED International membership as it contributes to the connectedness of the European digital health landscape,” says SNOMED International CEO Don Sweete. “Joining an active coalition of SNOMED CT adopters, Croatia’s membership recognizes the benefits clinical terminology can produce for the nation’s and broader European Union’s citizens and health systems with a commitment to implementing SNOMED.” “Although the Croatian health system has been one of the leaders among the EU countries in the cross-border exchange of health data, more precisely e-prescriptions and patient summaries, the use of SNOMED CT at the national level will lower barriers for Croatia to join any subsequent EU level initiatives aiming at cross-border exchange and reuse of health data,” says Croatian Minister Beroš. “Recognition of the reform progress of the Croatian health system by the EU and global experts once again confirms that this Government and the health administration are on the right path towards improving the health picture of the nation. All of the above underlines our reform slogan ‘Health comes first’, which most vividly expresses what we are striving for”, concludes Minister Beroš. To learn more about how SNOMED CT can enable achievement of digital health priorities, visit snomed.org . Media inquiries The Croatian Ministry of Health Email: pitajtenas@miz.hr https://zdravstvo.gov.hr SNOMED International Email: comms@snomed.org www.snomed.org Subscribe to SNOMED International news Stay up to date on SNOMED news, features, developments and newsletters by subscribing to our news service. Subscribe

As the largest and most comprehensive clinical terminology in the world, SNOMED CT provides a structured data ontology along with useful resources to aid and assist with implementation, and the Implementation Support Portal is our flagship resource. Implementers As the largest and most comprehensive clinical terminology in the world, SNOMED CT provides a structured data ontology along with useful resources to aid and assist with implementation, and the Implementation Support Portal is our flagship resource. Visit the Portal Implementation Support Portal SNOMED International's Implementation Support Portal offers many support services to help you with your successful SNOMED CT implementation. Visit the Portal In Member Countries Regional customer support management We have dedicated customer relationship executives in each region. They provide support on a range of issues – for example, licensing, access or contact with other members. Submit your inquiry Product support document library We maintain a comprehensive library, evolving our documents as the implementation of SNOMED CT expands. We also provide editorial guidance to help ensure interoperability. Visit the document library Refset Management and Translation Tool SNOMED International provides online courses, learning pathways and other E-Learning materials that help to extend your knowledge and understanding of SNOMED CT. Refset Management and Translation Tool Implementers in non-Member countries Use SNOMED CT in a non-Member country If you are using and/or deploying SNOMED CT in a non-Member country/territory, you are required to apply for a license through the Member Licensing & Distribution Service (MLDS) on an annual basis. All license holders in non-Member countries or territories are required to submit a Statement of Usage via MLDS on an annual basis. Invoices are issued once annually. Request access from the helpdesk Learn more Events Annual Business Meetings, Expo, and SNOMED CT Web Series Learn more Get SNOMED CT Information about our license and fee structure Subscribe to SNOMED International news Stay up to date on SNOMED news, features, developments and newsletters by subscribing to our news service. Subscribe SNOMED CT Browser This tool allows you to browse the terminology easily, and to review the open source code. More about SNOMED CT Tools SNOMED CT Education SNOMED International provides online courses, learning pathways and other E-Learning materials that help to extend your knowledge and understanding of SNOMED CT. More about Education Mapping tools Snap2SNOMEDCT is a hosted tool for SNOMED International Members to collaboratively create and maintain simple maps to SNOMED CT. The SNOMED CT Mapping Tool is used by the IHTSDO Content Team to manage maps between SNOMED CT and other terminologies including ICD-10 and ICD-9CM. Snap2SNOMEDCT Access the mapping tool Implementation Support Portal Implementers In Member Countries Implementers In non-Member Countries

Belize advances its digital health goals with the adoption of SNOMED CT Back 16 Dec 2024 Back SNOMED International is excited to announce Belize as our most recent SNOMED International Member in the Central American and Caribbean region. Other countries in the region that have also recently become SNOMED International Members are El Salvador and Jamaica. SNOMED CT is a comprehensive, multilingual healthcare terminology created for use by healthcare professionals to capture the care of individuals in an electronic health record and facilitate sharing, decision support and analytics, to support safe and effective health information exchange. Belize, an ethnically, geographically and culturally diverse country, is located on the northeast side of Central America south of the Yucatán Peninsula. A nation of close to 500,000 citizens, the country’s official language is English; its second most widely spoken language is Spanish. Belize’s adoption of SNOMED CT is part of its efforts to digitize and modernize its healthcare delivery services. In 2022, the country announced the digital transformation of its health sector via a European Union-funded Health Sector Support Programme Belize Project to develop and implement a Clinical Data Exchange Platform to enable interconnectivity and interoperability between various different platforms such as Belize's Health Information System (BHIS). In June 2024, the Belize Ministry of Health and Wellness announced it was seeking Inter-American Development Bank funding for further integration of digital technologies as part of its work to strengthen the BHIS and develop a more comprehensive framework for telemedicine, starting with a pilot program focused on mental health services. The country’s Ministry of Health and Wellness will act as the National Release Centre (NRC) for the country. NRCs serve as the interface between SNOMED International, the national users and Affiliates, and other Members. “We are excited to see a number of countries in Latin America and the Caribbean becoming SNOMED international Members as one important element of their digital health strategies,” said SNOMED International CEO Don Sweete. “Belize’s decision to become a Member demonstrates that SNOMED CT is designed to support Members of all sizes, and we know Belize will also benefit from the knowledge and experience of other countries in the region such as El Salvador and Jamaica.” SNOMED International is an international not-for-profit organization that develops and promotes the use of SNOMED CT, a comprehensive, multilingual healthcare terminology created for use by healthcare professionals to capture the care of individuals in an electronic health record and facilitate sharing, decision support and analytics, to support safe and effective health information exchange. The purpose of SNOMED International is to develop, maintain, promote, and enable the uptake and correct use of its terminology products in health systems, services and products around the world. Subscribe to SNOMED International news Stay up to date on SNOMED news, features, developments and newsletters by subscribing to our news service. Subscribe

Membership National licensing ensures that high quality clinical information is available to all stakeholders. Members of SNOMED International can be an agency of a national government, or another body endorsed by an appropriate national government authority within the territory it represents. Back Benefits Free use of SNOMED CT within the Member’s territory. Members manage the release, distribution, and sub-licensing of SNOMED CT and other products of the Association within their Territory. Twice-yearly updates of the international release of SNOMED CT Ability to create national extensions of SNOMED CT and to apply to translate the standard into national language(s) Free access to SNOMED CT resources within the Member’s territory available via the document library Free access to SNOMED CT educational programming. View our E-learning resources Ability to suggest the addition of new concepts or changes to current concepts and relationships, in the international release Representation on the SNOMED International General Assembly and Member Forum, the organization’s governance bodies. Members play a critical governance role through the approval of the organization's budget and strategy. National delegates invited to participate in twice-yearly governance, advisory, working special interest and project group business meetings and conferences. Learn more about our events Access to forums and networks to share, and learn from, SNOMED CT implementation experiences Fees Membership fees are based on the most current World Bank Gross National Income (GNI) Atlas values as published by the World Bank. 2026 Membership Fees Our Customer Stakeholder & Relationship Team Contact the appropriate SNOMED International Customer Stakeholder & Relationship Management executive. Global: Shelley Lipon North America, Middle East & Africa: Nick Egarhos Latin America: Victor Medina Europe: Licinio Mano Asia Pacific: Liara Tutina Contact us Contact us Do you have questions about SNOMED International membership, licensing or fee exemptions? For a fee calculation or estimate, please contact info@snomed.org with information about your intended use. Other modes of deployment e.g. web applications and browsers, will require special permission and fees applied. Access the help center Subscribe to SNOMED International news Stay up to date on SNOMED news, features, developments and newsletters by subscribing to our news service. Subscribe

Malaffi sets a regional benchmark with its comprehensive SNOMED CT enabled HIE implementation in the Middle East and North Africa Back 20 Oct 2025 Back Malaffi achieves comprehensive SNOMED CT implementation within the MENA region M42’s Abu Dhabi Health Data Services (ADHDS), through its flagship Health Information Exchange (HIE), Malaffi , has achieved a significant milestone in advancing clinical data standardization across the Emirate of Abu Dhabi. This large-scale implementation represents the first comprehensive deployment of SNOMED CT within a Health Information Exchange in the Middle East and North Africa (MENA) region, marking a major step toward establishing semantic interoperability across healthcare systems. SNOMED International has acknowledged ADHDS’s leadership and commitment to improving the quality, consistency, and usability of clinical data. The implementation demonstrates how structured terminology and data governance frameworks can work together to enhance the exchange and meaning of health information across a complex, multi-provider ecosystem. Through this initiative, SNOMED CT has been integrated into multiple clinical domains within Malaffi, including diagnoses, allergies, chronic diseases, family and social history, and diagnostic procedures. This comprehensive coverage ensures consistent and accurate representation of clinical concepts across the Emirate’s healthcare providers, supporting a unified approach to health information management. By embedding SNOMED CT directly within electronic medical record (EMR) systems, ADHDS has introduced a sustainable and cost-effective model for data standardization, eliminating reliance on third-party terminology servers. The resulting improvement in data quality at the source enables a range of downstream benefits, including enhanced clinical decision support, AI-driven analytics, and population health management. According to SNOMED International Chief Executive Officer Don Sweete, “Abu Dhabi Health Data Services and Malaffi have set an important precedent for how clinical terminology can transform health data quality and interoperability. Their achievements illustrate the impact of strong regulatory alignment, dedicated implementation expertise, and continuous improvement in realizing the promise of digital health.” The implementation was supported by a robust policy and regulatory environment, guided by the Department of Health – Abu Dhabi, which established coding standards and frameworks for system-wide adoption. This alignment, together with the UAE’s membership in SNOMED International, provided a solid foundation for sustainable and scalable implementation. Beyond improving interoperability, the structured clinical data generated through Malaffi’s SNOMED CT implementation provides a foundation for the next generation of data-driven healthcare in the region. It supports predictive modeling, personalized medicine, and real-time population health monitoring, aligning with Abu Dhabi’s broader vision for an AI-enabled health system. This collaboration between SNOMED International and ADHDS exemplifies how international clinical standards can be applied at scale to strengthen digital health ecosystems. The initiative not only advances the quality of care within Abu Dhabi but also serves as a reference point for other health systems in the Middle East and globally seeking to achieve similar goals in data quality, interoperability, and digital transformation. Visit SNOMED in Action to read the Malaffi case study . Subscribe to SNOMED International news Stay up to date on SNOMED news, features, developments and newsletters by subscribing to our news service. Subscribe

Learn about SNOMED CT in Norway: internal implementations and global experiences Back 12 Mar 2025 Back For the first time, SNOMED International, as part of the April 2025 Business Meetings in Oslo, is hosting a full day of presentations and discussions focused on Norway. To be held on April 10, SNOMED CT in Norway Day will offer 10 sessions highlighting SNOMED CT use and initiatives in Norway and more broadly in Europe. The event builds on the SNOMED CT in Europe day held in 2024 in Belgium and is free to attend, whether onsite or online. In this blog, Marte Rime Bø, Senior Advisor for Terminology at the Norwegian Directorate of Health , discusses the goal of the day’s events, what attendees can expect to learn and why you should consider attending. Q: Why are we hosting a day focused on SNOMED CT in Norway specifically? A: We thought this was a very good opportunity to share with the SNOMED International community some concrete business cases from Norway. It’s also a great opportunity for our collaborating organizations, including health regions, hospitals, municipalities, vendors and professional clinical organizations, to get together and learn about what’s happening with SNOMED CT in Norway and internationally as well. Q: How is the day set up? A: There are 10 sessions highlighting SNOMED CT use and initiatives: the seven morning sessions are focused on Norway, while the three afternoon sessions feature international presenters discussing the European Health Data Space, ICD-11 and artificial intelligence. The day includes a keynote on dental health and big data, as well as presentations on topics such as using screening for intestinal and prostate cancers, alerts for medication prescriptions, and standardized care plans for nursing. Hopefully, it's both broad enough and specific enough to be interesting for our international visitors. We're trying to keep it very grounded! That’s also why we’re having all the sessions in English, rather than Norwegian. Luckily, most Norwegians know English! Q: What are the roles of the Norwegian Directorate of Health and the Norway National Release Centre in the event? A: The Directorate of Health runs the National Release Centre (NRC), which is responsible for the national licensing and use of SNOMED CT in Norway. The NRC maintains and distributes the Norwegian extension of SNOMED CT, and functions as a national support centre. The Directorate of Health, which will manage the event and provide context for the presentations, is responsible for a number of different areas – some people work with the registries and some with the medications or nursing module; we also think some of the people in other departments of the Directorate of Health who work with standardization, architecture, code systems, terminology, international collaboration and registries will be interested, so we have engaged that expertise to participate. Q: What will be the focus of the keynote on dental health and big data? A: This session is going to be really interesting. Jørn André Jørgensen, who is giving this keynote, is an Advisor, Electronic Patient Record, and Digital Development, Vestfold County Municipality. Also a dentist, he is going to talk about the multiple decades of dental data the municipality has collected – all of which is SNOMED CT-coded and structured. That includes every part of the tooth and every diagnosis made, along with X-rays and operations. He's going to look at this from an economic perspective as well to see if, by using this accumulated data, we can predict which patients we will need to see and when. Dental care is free for everybody under 18 in Norway, so we have a lot of data. He will discuss using the data to better understand which children are going to get cavities and when. That can help in making funding and policy decisions, and to improve the quality of care. But dental care can also overlap with other types of healthcare; for example, dentists often identify a number of medical conditions whose symptoms appear in the mouth (such as oral cancer), and it’s hard for general practitioners to catch that since they don’t usually look in your mouth. He will also discuss the importance of being able to share data safely between general healthcare and dental care, because those two domains are separate in Norway. Additionally, he will discuss using artificial intelligence (AI) in clinical terminology to better understand if there are any indicators dentists can use to detect in advance potential health events such as heart attacks, so it’s a look at the bigger picture, and the socio-economical benefits that can be realized from structuring that dental data. Q: Standardized care plans in nursing are a presentation topic at many SNOMED CT events. What will this session focus on? A: The speaker will present a dashboard where the health region can track the use of nursing terminology in their electronic patient record. They can see which nursing care plans are used where, and which concepts are most used from the different plans. They can also follow the nursing diagnosis, interventions and outcomes when the patient is transferred to a new ward. The data shown in the dashboard is in real-time, and can be used for quality work both in the wards and in the development or maintenance of nursing care plans. Q: What can you tell us about the cancer registry session? A: The cancer screening program in Norway is for intestinal, breast and cervical cancer. All the screenings (tests), including those done outside the screening program, are performed in hospitals, except cervical cancer screening, and the results need to be reported to the registries. In this session, the speakers will share how they went from using unstructured forms to using SNOMED CT to submit information to the national registries. One of the registries uses FHIR for automatic data capture where the content of the forms suggested is based on the information in the Electronic Health Record (EHR). This reduces double registration for doctors and serves to quality assure the content. Now the EHR generates a report that the doctor can approve, and it's then submitted directly to the registry, so that's a very concrete way of making the workday more efficient for health professionals. Q: What are the three most important takeaways you hope attendees will leave with? A: There are about 29,000 doctors, 109,000 nurses and another 40,000 or so other health professionals such as physiotherapists and nutritionists in Norway, and they need a terminology to document the care they are providing. There are a variety of perspectives across these different professionals on the value of using a clinical terminology – positive, negative and indifferent. So the first is showing to a local audience the diversity of SNOMED CT – who is using it and how. The second is understanding how these local initiatives fit into or align with international initiatives – how we contribute to them and what we do. Third, I hope that people will make connections with other people who may be having the same kind of problems, or maybe they can even share solutions they have found. People can be very separated or isolated and working on their own things, so maybe this will broaden their horizons. For more information on SNOMED CT in Norway, visit the SNOMED International website and view the event program . Subscribe to SNOMED International news Stay up to date on SNOMED news, features, developments and newsletters by subscribing to our news service. Subscribe

INSERM and SNOMED International release SNOMED CT to Orphanet map supporting representation and use Back 28 Oct 2021 Back OCTOBER 28, 2021 – In February 2020, the Institut national de la santé et de la recherche médicale (Inserm) and SNOMED International renewed their relationship governing the rare disease content included in SNOMED CT. With an objective to improve the visibility of rare diseases in terminologies and promote interoperability among different codification and terminology systems, both organizations are pleased to announce the production release of the SNOMED CT (RF2) to Orphanet (human readable) map. The SNOMED CT to Orphanet Map Release is the product of a joint project carried out under the renewed 2020 Inserm and SNOMED International collaboration agreement. Based on an agreed priority set, new concepts for rare diseases as defined in Orphanet (clinically defined entities occurring in less than 1 in 2,000 inhabitants) have been added to SNOMED CT, and a map created from SNOMED CT to Orphanet. One of the key use cases for this standardised map is to meet European Union (EU) requirements to implement ORPHA codes in health systems for Rare Diseases epidemiology and research, including use in registries, enabling linkage from SNOMED CT enabled Electronic Health Records (EHRs), and supporting cross-border interoperability with International Classification of Disease (ICD)-based coding systems. Inserm is the only public research organization in France entirely dedicated to human health operating under the joint authority of the French Ministry of Health and the National Institute of Health and Medical Research. Inserm’s objective is to promote the health of all by advancing knowledge about life and disease, treatment innovation, and public health research. Orphanet, the Inserm unit dedicated to knowledge on rare diseases, maintains the Orphanet nomenclature of rare diseases (ORPHA codes) and provides a multilingual database of information related to rare diseases and orphan drugs. SNOMED CT is the world’s largest clinical terminology, representing a collection of more than 350,000+ clinical concepts and built upon ontological principles, particularly useful when applied in research and planning capacities. SNOMED CT’s primary purpose is to support all healthcare professionals in their recording and sharing of detailed patient information within EHRs and across healthcare communities globally. The two organizations plan to publish the SNOMED CT to Orphanet map annually in the October timeframe. The map will be extended over the coming years to include further Rare Diseases included in Orphanet. Resources supporting the SNOMED CT to Inserm map include the October 2021 Release Notes . Additionally, editorial guidance for SNOMED CT content is found in the SNOMED CT Editorial Guide and editorial guidance for Orphanet Nomenclature of Rare Diseases can be found in Orphanet. Access to the human readable map is made available from Inserm from http://www.orphadata.org/ , and the RF2 version from SNOMED International for Members and Affiliates from the organization’s Member Licensing and Distribution Service . Visit SNOMED International , Inserm and Orphanet for more information. Subscribe to SNOMED International news Stay up to date on SNOMED news, features, developments and newsletters by subscribing to our news service. Subscribe

SNOMED collaborates with Bahmni Coalition to equip open-source EMR with SNOMED CT’s clinical terminology for low-resource, digitally maturing settings Back 5 Oct 2023 Back SNOMED International and the Bahmni Coalition are excited to announce a joint project to produce a SNOMED CT module for integration with Bahmni's open-source Electronic Medical Record (EMR.) SNOMED International’s vision to enable improved health for patients and citizens globally is well aligned with this initiative with its potential for improving care in digitally maturing and resource-constrained regions. Slated to launch at the end of the year, the Bahmni + SNOMED CT project will produce a SNOMED CT module for integration with Bahmni's open-source EMR to provide structured terminology openly to digitally maturing markets. The module will demonstrate how SNOMED CT's standardized clinical terms can be used by open-source EMRs to add structured meaning to clinical information, supporting efficient exchange among healthcare systems. About Bahmni Bahmni, a recognized Digital Public Good , is built on the OpenMRS (medical record system) platform. It is an open-source EMR (a digital version of a patient's healthcare record) and hospital information system that combines and enhances existing open-source products in a single solution. Developed by global technology consultancy Thoughtworks , Bahmni brings together essential functionalities such as patient registration, appointments, recording diagnosis and procedures, billing, lab, pharmacy, and more, into one cohesive platform. With more than 500 implementations in more than 50 countries, Bahmni is designed for use in resource-constrained settings, many of which are in the early stages of digital health transformation. It is the preferred solution in many Asian and African countries and a strategic asset for many large humanitarian organizations. About SNOMED CT SNOMED CT is a comprehensive, multilingual healthcare terminology created for use by healthcare professionals to capture the care of individuals in an electronic health record (EHR) and facilitate sharing, decision support and analytics, to support safe and effective health information exchange. About the project The integration will enable organizations to use SNOMED CT along with the SNOMED CT Terminology Server in their health facilities to record diagnosis and clinical data as well as for reporting and clinical decision support use cases. Users will be able to search and save diagnoses, receive alerts when a drug-diagnosis interaction is contraindicated, generate diagnosis reports, and create forms. With the integration of SNOMED CT, patient responses can be standardized and therefore more easily exchanged with other electronic health records. Driven by a mission to enable the clear exchange and analysis of health information for all, this initiative offers SNOMED International the opportunity to deliver on its humanitarian goals: expanding access to the clinical terminology, reducing the barriers to SNOMED CT adoption and helping governments and countries better understand how to enhance and evolve their existing digital systems to realize the benefits of SNOMED CT. The initiative, which will also enable an implementation showcase and demonstrate the terminology’s powerful utility, is an excellent example of SNOMED International’s commitment to waiving fees for not-for-profit organizations that use SNOMED CT non-commercially for the betterment of people living in rural areas and for resource-constrained countries at the early stages of their digital health transformation. It also demonstrates the organization’s commitment to integrating with other health data standards in an effort to simplify reporting to other global organizations such as the World Health Organization and to be a good “global standards citizen.” “We are extremely excited to see this project develop and take shape,” said SNOMED International CEO Don Sweete. “As an organization whose mission is to benefit the health of humankind, we are honored to be able to contribute to this international and collaborative effort, to be part of an initiative that will have such a positive impact on patients and healthcare organizations in regions that most need it.” The benefits In addition to providing access to standardized and accurate clinical data and clinical decision support, the initiative supports the development of better healthcare policies and public health initiatives. The adoption of SNOMED CT by close to 50 Member countries and by thousands of affiliate license users in non-Member countries also facilitates the use of the module around the globe and the exchange of health data across borders, further extending its utility. Next steps Launch of the module at the end of 2023 will enhance clinical decision support use cases for drug-drug interactions and allergies. It will also focus on improved HL7 FHIR compatibility, integration with the SNOMED CT data analytics tool, enabling WHO ICD-10 reports, and integration with a new micro FHIR terminology server. To learn more about this exciting initiative, visit the project website . Media Inquiries Angshuman Sarkar Thoughtworks Email: angshus@thoughtworks.com Kelly Kuru SNOMED International Email: comms@snomed.org Subscribe to SNOMED International news Stay up to date on SNOMED news, features, developments and newsletters by subscribing to our news service. Subscribe

New collaboration agreement between SNOMED International and LOINC® from Regenstrief Back 27 Oct 2022 Back London, United Kingdom and Indianapolis, Indiana, United States LOINC® from Regenstrief and SNOMED International have signed a new collaboration agreement facilitating the adoption of standardized terminology to support broadened interoperability of health data exchange around the globe with the goal of enhancing and improving the delivery of healthcare. The agreement also paves the way forward for coordinated use of SNOMED CT and LOINC by both SNOMED International and Regenstrief, with each retaining editorial control of its respective standard. In addition to promoting the adoption of practices to facilitate use and interoperability of the terminology standards produced by both organizations, the new agreement targets reduction of current and potential duplication. Serving an increasingly intersecting group of global implementers, the agreement will deliver improved healthcare through standardized terminology and enhanced clinical system interoperability while providing support for providers and users who implement different combinations of both standards. The new agreement lays the foundation for development of a LOINC extension that aligns with the SNOMED CT model, enabling SNOMED International and Regenstrief to distribute LOINC and SNOMED CT content together to their respective users. The extension will create both SNOMED CT and LOINC codes for all concepts that are shared between the terminologies, making it easy for implementers to have a unified approach to implementing both standards and to meet clinical and regulatory requirements globally. The 2022 agreement extends a relationship, inaugurated in 2013, which linked the rich clinical semantics of SNOMED to LOINC concepts enabling the identification, exchange, and collection of data across health systems. The COVID-19 pandemic has highlighted and further emphasized the importance of coordinated standards to support interoperability. Looking to the future, annual planning meetings and dedicated agreement liaisons will maintain open lines of communication between the SNOMED CT and LOINC teams, providing opportunities to discuss joint work products and to explore new collaborations. Owned and governed by 43 global Members, SNOMED International is a not-for-profit organization that is charged with setting global standards for health terminology, a critical element of safe and effective healthcare. SNOMED CT is a comprehensive, multilingual healthcare terminology created for use by healthcare professionals to capture the care of individuals in an electronic health record and facilitate sharing, decision support and analytics, to support safe and effective health information exchange. LOINC, short for Logical Observation Identifiers Names and Codes, is a worldwide standard, used in 193 countries and available in 20 languages, for identifying health measurements, observations and documents enabling the identification, exchange, and collection of data across health systems. Created and maintained at Regenstrief Institute, the system is free to users. “Opportunities to support robust interoperable health information exchange, nationally and globally, are vital to providing the best quality healthcare,” said Marjorie Rallins, DPM, M.S., executive director of LOINC Health Data Standards. “The strategic and diplomatic value in Regenstrief and SNOMED working together should not be underestimated.” SNOMED International CEO Don Sweete describes the collaboration with LOINC as a major breakthrough. “Globally, our implementers operate in a thriving ecosystem of terminology and messaging standards, breeding a certain element of interdependence.” Sweete goes on to state, “With the aim of easing the challenges for implementers of multiple standards, the agreement with LOINC is one that will go the distance in reducing duplicative efforts, facilitating the path to data sharing and interoperability.” As the agreement is operationalized, both organizations have shared developments and next steps with their communities. Most recently, ambassadors from each organization communicated the nature of the collaboration agreement in more detail at the LOINC Conference, October 24-27 at Les Pensières Center for Global Health in Annecy, France, and the SNOMED CT Expo held in September 2022. For more information on this collaboration, please visit https://www.snomed.org/ and https://loinc.org/ . Subscribe to SNOMED International news Stay up to date on SNOMED news, features, developments and newsletters by subscribing to our news service. Subscribe