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Efficient and unified cancer data collection: The role of SNOMED CT in linking registries and electronic health records

IKNL (1 of 2)

Efficient and unified cancer data collection: The role of SNOMED CT in linking registries and electronic health records

Country / Region
EMEA
Tags
Collaboration, Data analytics, Data quality, Mapping, Research

Both the Netherlands Comprehensive Cancer Organization (IKNL) and Dutch Institute for Clinical Auditing (DICA) collect patient data concerning esophageal and gastric cancer, albeit with different primary purposes—IKNL for statistics and research and DICA for auditing and research. To enhance the efficiency of data collection, IKNL and DICA have initiated a joint effort to harmonize their registries. This poster presents the methodology used to align these registries with electronic health records (EHRs) and describes how SNOMED CT contributes to the standardization of their datasets, enabling consistent and streamlined clinical data reporting.

Description

This research focuses on the harmonization of the overlapping items between two national registries‚Äîmanaged by the Netherlands Comprehensive Cancer Organization (IKNL) and the Dutch Institute for Clinical Auditing (DICA)‚ that collect data on patients with esophageal and gastric cancer. The aim is to align these datasets while simultaneously standardize clinical terminology (among others SNOMED CT) and prepare (future) integration with electronic health record (EHR) systems. This will enhance data interoperability, minimize redundancy, and enable more effective use of clinical information for research, auditing, and reporting purposes. Ultimately this will also contribute to a reduction of the registration burden and an improvement of data quality.

Scope

The Dutch government decided that SNOMED-CT should be implemented as a standard in electronic health records (EHR). Our goal is to prepare for (future) integration with electronic health record (EHR) systems and therefore it was investigated how SNOMED CT can contribute to standardization of the harmonized data set.

How SNOMED CT will be used

SNOMED CT is used in the new proposals for the harmonized data set.

Why SNOMED CT will be used

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