Country / Region
EMEA
Tags
Clinical Practice, Collaboration, Global/International, Implementation, Innovation, Research
We want to visualise the value creation generated by the implementation of an innovative care pathway for non-communicable diseases in children, using moderate-to-severe asthma as a prototype. More specifically, we want to evaluate the impact of implementing, a next generation pediatric asthma patient journey, which is a digital transformation of an integrated clinical care pathway for moderate-to-severe asthma in young patients, where clinical outcome is the primary focus.
Description
The imperative to enhance healthcare for children and young people (CYP) with non-communicable diseases (NCDs) demands innovative, integrated care models. This research delineates the development and prospective evaluation of a 'Next Generation Pediatric Asthma Patient Journey,' a digitally-enabled transformation of an integrated care pathway for moderate-to-severe asthma. Utilizing asthma as a prototypical NCD, we address critical barriers to multi-stakeholder collaboration, notably interoperability challenges and the fragmented integration of digital health tools within existing healthcare ecosystems.
Scope
The intervention aims to empower CYP with moderate-to-severe asthma on Maintenance and Reliever Therapy (MART) towards enhanced self-management via a virtual asthma clinic. Primary outcomes encompass validated measures of asthma control, medication adherence, self-management capabilities, and quality of life for both patients and caregivers. Healthcare utilization rates will serve as proxies for cost-effectiveness.
This study seeks to demonstrate that a digitally integrated care trajectory, underpinned by semantic interoperability, can significantly improve clinical and patient-reported outcomes in pediatric asthma. Beyond the immediate clinical benefits, the project will deliver a scalable, next-generation model for NCD management in CYP, fostering more efficient, streamlined, and patient-centered care, ultimately contributing to improved morbidity, mortality, and resource allocation within pediatric healthcare.
How SNOMED CT will be used
Our methodology centers on establishing an interoperable data framework across primary, secondary, and tertiary care settings, independent of disparate Electronic Health Record (EHR) systems. This involves the structured, automated capture of multi-modal data from EHRs, digital respiratory technologies (handheld spirometry, smart inhalers), a dedicated mobile health application, and a tele-monitoring platform.
A cornerstone of this initiative is the mapping of these diverse data streams to the Observational Medical Outcomes Partnership (OMOP) Common Data Model (CDM), ensuring standardized representation of patient and disease characteristics, including comorbidities. This approach facilitates the generation of robust real-world evidence.
Why SNOMED CT will be used
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