International League Against Epilepsy
In 2022, SNOMED International and the International League Against Epilepsy (ILAE) signed a five-year agreement to contribute global improvements in care and services for people with epilepsy, a group of disorders characterized by recurrent seizures.
The ILAE Commission for Big Data and SNOMED International have established an Epilepsy Clinical Project Group. Members of this group will work together to define processes to maintain and update epilepsy content within the international edition of SNOMED CT’s clinical terminology, the world’s most comprehensive healthcare terminology product.
Over 50 million people worldwide have epilepsy, making it one of the most common neurological diseases globally. Although about two-thirds of people with epilepsy could be seizure free with medication treatment, gaps in diagnosis and treatment mean that millions of people continue to have seizures, which affect their health, relationships, education, and employment opportunities.
The SNOMED CT International Edition has included epilepsy content for many years; now, users will benefit from input from global experts in a systematic way to ensure that the content is up to date and out of date epilepsy terminology is retired.